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Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. Apparently this can work better than Losartan? I am 31 years old and had my BAV repaired at The Cleveland Clinic in 1999 when I was 15. Think to report back to let us know how things go for you, personally. There are a lot of variables here, even from the short story youve shared. Hi Dr. Creswell. Star Jones. I dont know anything about crossfit but I see his times are average on that page. Jeff. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. Your sons doctors are undoubtedly experts at pediatric patients. To much info to much detail so much information and advice. I have severe aortic stenosis with no signs or symptoms. Bicuspid Aortic Valve In the blog post, I talked about the circumstances when operation is needed.as well as when sports are generally safe. A total of 25,556 newborns (51% male; mean age, 12 days) underwent echocardiography. Any person in my family there was no problem with the heart. . Some cardiologists tell me that I can run up to 130 beats per minute ; others say theyd prefer I do power walking because pressure always rises while running. Operation is needed if there is severe aortic valve stenosis, severe valve regurgitation, or significant enlargement of the aorta. Did the heart have to work harder to compensate? I would think that, ordinarily, a homograft would heal up along a similar timeline to other types of valve/aortic root replacement. Fast forward, he is now 13 and we went yesterday for his yearly. However, I absolutely love being competitive at running, and dont want to jeopardize that either. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. Your situation is complicated.and it wont be possible to give a complete answer here without additional information. Could the changes in my LV be the result of the physiological, not the pathological change? http://www.24hourgym.us. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. The 72-year-old soap oprea legend started feeling a tightness in her chest in Fall 2018, but waved it off until the end of October, when she had to be rushed to the hospital. I do not feel any of the effect of my condition when I run or workout. Like you point out, its always wise to be vigilant after surgery for things that might be amiss.and get checked out. BAV is one of the most common congenital heart conditions, occurring in about 2% of individuals. Periodic re-evaluation with echocardiogram and/or CT scanning is used for most patients in this circumstance. (Or do I just need to train even harder??). But Bob, you confirm that it does for you; and unfortunately I see same for me although 25 years younger. When first diagnosed with BAV I just nodded and smiled it was only the following day that reality hit home and I thought of all of the questions that I would have liked to have asked the cardiologist! So for that first month, we usually advise no driving, lifting, pulling, pushing, reaching, etc. Still no stenosis or regurgitation, aorta now 35 mm, he is 6 ft, 150 pounds. I am 26 yera old , I have aortic aneurisem. In your case, though, the infection might well influence the healing process. Last i took him for the check up and everything is still the same but they said now the guidelines has changed and he is on the borderline of Mild to Moderate which will move him to restricted activities. Zdenko . My aorta diameter is 4.0 cm and has increased by 0.8 cm (from 3.2 cm) in the past 5 years so the diameter is increasing rapidly. Kimberly has experienced heart valve disease firsthand. My son is 15 years old, he was born with BAV /aortic stenosis. I was running 9 to 10 minute miles. I would like to know more about your recovery timeline since you are so much further out from surgery than I amfor instance; how long before you could do long rides again; when could you do tempo efforts; start high heart rate intervals; and finally race again? We have contacted the Cleveland Clinic to learn more and will report back soon. They said that everything is working fine except that I have a slightly enlarged aorta and the very beginnings of an aortic aneurism which most likely occurred PRIOR to surgery as a result of the pressure over the years and my old BAV. The star's mother, Rita Owens, was diagnosed with heart failure after passing out while teaching art at a New Jersey high school in 2004. Also, due to a bout of DVT and elevated d-dimers Im on Warfarin for life. Im a 30 year old male who is currently living in Asia with family. They ruled out Marfans syndrome because his aorta was dilating. For example, are there data that shows what happens to aortic diameters once sports have been stopped? Many congenital heart defects cause few or no symptoms. Arrhythmias may sometimes manifest many years after surgical repair of congenital heart defects. This is an unfortunate situation for the athlete patient because the consensus guidelines do not yet recommend operation, yet advise against strenuous sports activities. Are there any things I can do now to help minimize my risk? Business, Economics, and Finance. More on Athletes and Bicuspid Aortic Valve (BAV) - Athlete's Heart Blog Now Id like to know your opinion about physical performance, before and after. The American College of Cardiology (ACC) in conjunction with the American Heart Association (AHA) has issued guidelines for the evaluation, monitoring, and treatment of individuals with BAV: In my opinion, these are useful guidelines for athletes and non-athletes, alike. And what would moderate weight lifting be defined as? Maybe you can help me with some questions. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. I am young with many years ahead, I dont want to accept this just yet when I know theyre is possibilty of repair. Its a hard thing to describe to my cardiologist that my legs and HR are not cooperating when the pace picks up. However my Sinus of valsalva is dilated between 45-47mm (depending on the machine used). Ordinarily, athlete patients with mild degrees of valve regurgitation can continue to participate in their sports. Bicuspid aortic valve is a type of abnormality of the aortic valve. I have recently had CT scan and MRI scan, following some chest pain experienced on track while doing marathon training. It is quite frustrating, Im running with some guys that have a hard time believing that I run a marathon. After finding out about her heart disease, Braxton stopped eating unhealthy foods at night. Bicuspid aortic valve refers to a spectrum of deformed aortic valves with two functional leaflets or cusps which are often unequal in size. Normal biventricular size and function, no scar. "Were saying to put the focus back on you and make a date with your heart.". i.e. The ST junction and ascending aorta are mildly dilated max 35mm. Your sons cardiologist would seem to be in the best position to offer specific advice. Arnold Schwarzenegger (The Governator) - Heart Valve Replacement. Ad Choices, Blood molecules as they exit the left ventricle: I'll be back., The 42 Best Romantic Comedies of All Time, The 25 Best Shows on Netflix to Watch Right Now. Thanks, The free weights are about 10kg and Im not doing any really heavy weights. I wonder if there is also a psychological factor involved. They all underwent aortic valve replacement. This procedure has the particular benefit that no artificial valve (with the disadvantages described above) needs to be used. Many of us are not familiar with the many types and facets of the martial arts. Also he told me I can lift weights and do other activities. no symptoms yet please help. I would pose these questions to your doctor(s) since they are most familiar with the details of your situation. Aortic replacement. Keyhole just refers to the type of incision used for conventional valve replacement like you had. ps. I dont have any ayptoms. Ive recently joined the gym to get fit an toned up but I cant get a clear answer from the cardiologist of what weights I cant actually do at the gym. I think you understand the guidelines correctly. The Institute is a unique collaboration of cardiothoracic and vascular surgeons, cardiologists, pulmonologists and basic scientists all working together without the boundaries of departments or specialties. If I had to choose a valve for AVR, Id choose a tissue valve. We have decided to wait and watch. Aortic valve regurgitation: Blood leaks back into your left ventricle instead of only flowing into your aorta. I am 18 now, and I am interested in weight lifting. Or its the result of the cumulative effect of the aortic and mitral valve leakage? Currently complete in 5-a-side football and have done for life. I was physically examined by a medical board at new Delhi for the post of a chemist in geological servey of India but they declared me unfit as I have BAV . Can you please shed some light on this is the sport performance supposed to gradually diminish (seems to go to zero for me) before the operation is needed? Please refer to this article if not: https://academic.oup.com/ejcts/article/50/3/400/2197426. At approximately three months I became very ill and was diagnosed with prosthetic valve endocarditis. will need careful consideration by your physicians who know all of the pertinent details. And my doctor do not give me responsive and exact answer to my questions regarding sports. He isnt interested in anything else. Advice here will be based on opinion rather than accumulated evidence in large numbers of children with BAV. Over time, these patients need to be monitored for continued proper function of both the pulmonary valve (that was borrowed) and the new substitute for the pulmonary valve. And my wife is screaming at me every time I try to exercise :)). Specifically, Im wondering about inversions like forearm stand, head stand, and hand stand. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. Outcomes in Adults With Bicuspid Aortic Valves - JAMA But thats just anecdote. Advice in this area must be individualized with your doctor(s). Bicuspid aortic valve is associated with abnormalities in the coronary artery anatomy in about 2% of patients, including anomalous origins of the coronary arteries and upwardly displaced coronary ostia. Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. I am a 36 yo male who was first diagnosed with BAV at the age of 17. A Public Death: Bill Paxton's Death Certificate Points To Surgery's We want our patients to know that whatever the level of care they need, our team will design and implement the health plan that works best for them, Starnes said. In addition, the Left ventrical has slowly increased over this same time period from 5.87 to 6.6 cm. Theo Wargo/Getty. I do not know aorta measurements. My name became public 25 years ago this week. thanks for sharing all this interesting info. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); This almost seems like an off the shelf answer and Id therefore be really keen to find out your thoughts? There is recent interest and experience with aortic valve repairinstead of replacementfor patients with BAV. I know they really should get checked, and they will. Athletes with BAV and enlargement of the aorta to greater than 4.5 cm can participate safely only in low intensity sports (eg, golf, bowling, billiards). My son is a very active and healthy 14 year old. I am a cycling Masters racer (Cat 2) for last 25 years . Functionally bicuspid aortic valve (type 1). Really helpful. If he is a candidate for valve replacement are these sports he could ever return to In the best case scenario? At this time, it is not known whether Arnold received the new valve using a surgical aortic . They are located between the ventricles and their corresponding artery, and .